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Rare Disease Day 2011

Royal Holloway is a leading institution in the development of novel therapies for rare diseases, including Spinal muscular atrophy, Spinal injury, Severe combined immunodeficiency (referred to as ‘child in a bubble’ disease) and Duchenne muscular dystrophy. Our scientists in the School of Biological Sciences are developing innovative techniques in gene and cell therapy. Much of this research is carried out in the labs of our RDD organiser Dr Rafael Yáñez and co-organiser Professor George Dickson.

We organised a full programme of activities to support Rare Disease Day on 28 February 2011, inviting the College community as well as local Secondary schools and the wider community. All activities were highly interactive and pitched to the level of a non-scientific audience.

Lectures, exhibitions, online and hands on activities, lab visits, documentary screenings, a networking event and debate were used to showcase the experience of affected people and their carers, the College's research and teaching in our School of Biological Sciences, and exciting new developments in Gene Therapy.

Links

2011 full programme - download here (PDF)

Watch the Liverstream from the event

 

1RoyalHollowaystudentvolunteersinFoundersbuilding

Royal Holloway student volunteers in Founder's Building.

2AfternoonpresentationbyJulianWalkerfromRareDiseaseUKinthePictureGallery

Afternoon presentation by Julian Walker from Genetic Alliance UK in the Picture Gallery.

 3LearningaboutmusculardystrophyinthePictureGalleryExhibition

Learning about muscular dystrophy in the Picture Gallery Exhibition.

 4TheBritishSocietyforGeneTherapystandattractedconstantattention

The British Society for Gene Therapy stand attracted constant attention. 

 5JenniferTrustforSpinalmuscularatrophyexhibitorstakeaDNAorigamibreak

Jennifer Trust for Spinal muscular atrophy exhibitors take a DNA origami break.

6TheRoyalHollowayBioSciencesSocietystudentvolunteershadamajorrole

The Royal Holloway BioSciences Society student volunteers had a major role. 

 7PostersessioninthePictureGallery

Poster Session in the Picture Gallery.

 8OnlineactivityintheComputerLab

Online activity in the Computer Lab.

 9DebateintheLargeBoardRoom

Debate in the Large Board Room.

 10LabvisitsintheSchoolofBiologicalSciences

Lab visits in the School of Biological Sciences. 

 11SrinMadipallitalkedabouthisexperienceofSpinalMuscularAtrophy

Srin Madipal­li talked about his experience of Spinal Muscular Atrophy.

 12OrganiserDrYáñezlecturinginWindsorAuditorium

Organiser Dr Rafael Yáñez lecturing in Windsor Auditorium.

 13EveninglectureaudienceintheWindsorAuditorium

Evening lecture audience in the Windsor Auditorium.

 14OrganiserProfDicksonflankedbyothereveningspeakersanswersquestionfromaudience

Organiser Professor Dickson flanked by other evening speakers answers questions from the audience.

 

 

Presentation

Click here to view a summary presentation on gene therapy.

Video highlights

 

Rare disease day logo

 

Sponsors

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