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Rare Disease Day 2014

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Images from Rare Disease Day 2013

Join together for better care!

Following our successful annual events held at Royal Holloway since 2011, we will again host a Rare Disease Day event in 2014 on Friday 28 February. This event is part of Royal Holloway’s Science Festival|.

The aim of the day is to draw attention to rare diseases and the millions of people who are affected by them, and highlight the need for more research and funding to help sufferers and their families. 

An exhibition, lectures, hands-on workshops and other activities will showcase rare disease research and care, and introduce attendees to freely available resources related to rare disease. For further information about Rare Disease Day including:

Getting involved

The 2014 event is now fully subscribed. For more details please contact us by email|

Programme

The programme for the day for school groups taking part can be downloaded here|

You can watch the afternoon presentations at 2pm here via web streaming|

About Rare Diseases

In Europe, a rare disease is defined as one with an incidence of less than 1 in 2,000 people. While each of them is rare, there are more than 7,000 rare diseases, which together affect 24 million (six per cent) people in Europe and take 20 per cent of all health care costs. Improving the care and developing diagnostics and treatments for people with rare diseases are now international priorities. 

Royal Holloway is a leading institution in the development of novel therapies for rare diseases, including Spinal muscular atrophy, Spinal injury, |Severe combined immunodeficiency (referred to as ‘child in a bubble’ disease)| and Duchenne muscular dystrophy|. Our scientists in the School of Biological Sciences|  are at the forefront in developing innovative techniques in gene and cell therapy.

 
 
 

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