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Paralympic Champion named as Rare Disease Day patron

Posted on 30/01/2012

Helene Raynsford

Royal Holloway, University of London is delighted to reveal Paralympic champion and Royal Holloway alumna Helene Raynsford is the patron for the College’s Rare Disease Day.

Helene, who suffers from rare disease Ehlers-Danlos Syndrome, made history by becoming the first woman to win an Olympic gold in the arms-only single sculls for Great Britain. She completed a Biochemistry degree at Royal Holloway in 2003 and is currently studying an MSC in Human Neuroscience.

Helene will be delivering a keynote speech on the day. She says: “I am delighted to be involved in the day and I hope it goes some way in raising the profile of those lesser known conditions which are often read about in text books but then rarely seen in practice. 

“The day gives the opportunity to showcase the research being undertaken on rarer conditions which is often overshadowed by those conditions with more house hold names. Hopefully it will empower those with rarer conditions to become experts in managing their conditions, increase their health outcomes and enjoy a better quality of life.”   

You can find information about Rare Disease Day at Royal Holloway, University of London at www.rhul.ac.uk/rarediseaseday or by following us on Twitter @RHULScience.


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