Rare Disease Day 2016
This year's Rare Disease Day event at Royal Holloway on February 29th 2016 was under the theme "Patient Voice: Join us in making the voice of rare diseases heard"
The full programme is available to download here. (PDF)
The keynote speaker sessions at this event can be watched here.
Our event linked up with the international rare disease day awareness campaign and took place in the lead up to Royal Holloway’s Science Festival.
Our 2016 exhibitors
About rare diseases
In Europe, a rare disease is defined as one with an incidence of less than 1 in 2,000 people. While each of them is rare, there are more than 7,000 rare diseases, which together affect 24 million (six per cent) people in Europe and take 20 per cent of all health care costs. Improving the care and developing diagnostics and treatments for people with rare diseases are now international priorities.
Royal Holloway is a leading institution in the development of novel therapies for rare diseases, including Spinal muscular atrophy, Spinal injury, Severe combined immunodeficiency (referred to as ‘child in a bubble’ disease) and Duchenne muscular dystrophy. Our scientists in the School of Biological Sciences are at the forefront in developing innovative techniques in gene and cell therapy. Much of this research is carried out in the labs of our RDD organiser Dr Rafael Yáñez and co-organiser Professor George Dickson.
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Rare Disease Day highlights 2016