Posted on 28/02/2014
Today (28th February), Royal Holloway, University of London, one of the UK’s biggest supporters of Rare Disease Day, is inviting school pupils to learn more about some of the world’s rarest medical conditions.
Rare Disease Day is acknowledged globally and aims to highlight the need for funding and research in order to better treat debilitating and life threatening diseases for millions of people who are affected by them.
The University, which is home to pioneering research in conditions including Spinal muscular atrophy and Duchenne muscular dystrophy, is showcasing rare disease research and care throughout the day through exhibitions, talks and workshops. Together with leading health organisations and a host of rare disease charities, including The British Society for Gene and Cell Therapy and DEBRA, the School of Biological Sciences at Royal Holloway is set to give visiting school children the opportunity to learn more about and be inspired by the wonders of medical research.
Event organiser Dr Rafael Yáñez, from the School of Biological Sciences, said: “Rare Disease Day is an incredibly important day for acknowledging the rarest conditions and joining together with leading charities and organisations to raise awareness of debilitating diseases to the general public.”
“We have a responsibility to continue to highlight devastating conditions and the needs of the millions of people affected. I’m hopeful that our interactive Rare Disease Day event will go some way in inspiring a future generation of rare disease researchers.”
The Rare Disease Day event falls during Royal Holloway’s Science Festival week.